Disability Health

Disability Health - infant with cochlear implant

Current Studies

Mechanisms of Health Literacy and Information Accessibility in the Deaf

Michael M. McKee, M.D., M.P.H., Principal Investigator

Funded by the NIH, Department of Health and Human Services ($3,069,270)

The overall objective of the Health Information & Literacy study is to elucidate the role of information marginalization on health literacy in Deaf American Sign Language (ASL) users and to better understand the mechanisms of health literacy in this population. The study also seeks to identify viable targets for future health literacy interventions, particularly how visual learners may access, interpret, and act on existing health information.

health info lab logo
Study Website: www.healthinfolab.com

Pregnancy Outcomes And Experiences Among Deaf And Hard Of Hearing Women

Michael M. McKee, M.D., M.P.H., Co-Primary Investigator

Funded by the National Institutes of Health

Read the full project announcement here

Along with the the Lurie Institute for Disability Policy at Brandeis University, co-Principal Investigator Michael M. McKee will lead a five-year NIH-funded study of perinatal care and pregnancy outcomes for women who are Deaf and Hard of Hearing (DHH). This pioneering study seeks to fill a critical knowledge gap. While women who are Deaf and hard of hearing are equally likely to be pregnant as women with other disabilities and women without disabilities, almost no research exists about their pregnancy experiences, maternal and birth outcomes, or associated healthcare costs.

 This study will provide the first-ever systematic understanding of pregnancy care costs and health outcomes for DHH women. With it, Mitra and McKee hope to establish the foundational knowledge necessary to develop future interventions to improve outcomes. They also plan to generate practice recommendations for clinicians to deliver improved perinatal health to DHH mothers and their infants.

Early Audiology Referral in Primary Care (EAR-PC): Improving Detection of Hearing Loss

Philip Zazove, M.D., Principal Investigator

Funded by the National Institutes of Health, National Institute on Deafness and Other Communication Disorders, Department of Health and Human Services ($1,624,469)

Dr. Zazove is lead investigator of this R21/R33 study, which seeks to increase hearing loss screenings for patients 55 and older by utilizing electronic clinical management tools in primary care setting and multimedia. The MiChart research team has designed a Best Practice Alert (BPA) which notifies primary care providers (PCPs) of HL assessment opportunities and allows clinicians to refer directly and efficiently to audiology specialists. The multimedia project, guided by Micheleen Hashikawa, M.D., also created a video to address physicians’ mental models of hearing loss. The investigation has expanded to look at patients’ decision-making around hearing testing and adoption of hearing aids. The EAR-PC study has partnered with the Beaumont Family Medicine network and Elie Mulhem, M.D., Associate Professor, Oakland University William Beaumont School of Medicine to successfully include 5,500 patients in the pilot study. Dr. Zazove anticipates over 20,000 patients in the R33 phase.

The research is guided by three aims, to:

  • Evaluate whether the EAR-PC program increases PCP identification of patients with mild to moderate HL compared to baseline data.

  • Evaluate whether the EAR-PC program increases appropriate PCP referral of patients with mild to moderate HL to audiology specialists.

  • Utilize both qualitative and quantitative inquiry to investigate how successful PCPs implement the intervention, identifying processes and tools that will allow this project to successfully scale

Parents Empowering Parents: National Research Center for Parents with Disabilities and their Families

Michael M. McKee, M.D., M.P.H., Co-Investigator

Funded through the National Institute of Disability, Independent Living, and Rehabilitation Research

It is a 5 year project. We will be conducting different studies to determine ideal approaches to empower and support parents with various disabilities. This will include a community-health care- research stakeholder meeting to discuss potential barriers and facilitators parental peer support program prior to the development of a novel online parental peer program that is accessible for parents with various disabilities. Dr. McKee's focus will be on providing input on ideal approaches to assist parents who are Deaf or hard of hearing.


Recent Publications

  1. Mckee MM, Lin FR, Zazove P. State of research and program development for adults with hearing loss. Disability and Health Journal. 2018. doi:10.1016/j.dhjo.2018.07.010.
  2. Pertz LPlegue M, Diehl K, Zazove P, Mckee M. Addressing Mental Health Needs for Deaf Patients Through an Integrated Health Care Model. The Journal of Deaf Studies and Deaf Education. 2018;23(3):240-248. doi: 10.1093/deafed/eny002.
  3. Mckee MM, Choi H, Wilson S, Dejonckheere MJ, Zazove P, Levy H. Determinants of Hearing Aid Use Among Older Americans With Hearing Loss. The Gerontologist. 2018. doi:10.1093/geront/gny051.
  4. Mahmoudi E, Zazove P, Meade M, McKee MM. Association Between Hearing Aid Use and Health Care Use and Cost Among Older Adults With Hearing Loss. JAMA Otolaryngol Head Neck Surg. Published online April 26, 2018. doi:10.1001/jamaoto.2018.0273
  5. Meeks LM, Herzer K, Jain NR. Removing Barriers and Facilitating Access. Academic Medicine. 2018;93(4):540-543. doi:10.1097/acm.0000000000002112.
  6. Dembo RS, Mitra M, Mckee M. The psychological consequences of violence against people with disabilities. Disability and Health Journal. 2018. doi:10.1016/j.dhjo.2018.01.006.

See More

  1. Pertz L, Plegue M, Diehl K, Zazove P, Mckee M. Addressing Mental Health Needs for Deaf Patients Through an Integrated Health Care Model. The Journal of Deaf Studies and Deaf Education. 2018;23(3):240-248. doi:10.1093/deafed/eny002.
  2. Zazove PPlegue MA, Kileny PR, McKee MMSchleicher LS, Green LA, Sen ARapai ME, Guetterman TC, Mulhem E. Initial Results of the Early Auditory Referral-Primary Care (EAR-PC) Study. American Journal of Preventive Medicine, Available online 18 August 2017. doi: 10.1016/j.amepre.2017.06.024
  3. Berman BA, Jo AM, Cumberland WC, Booth H, Wolfson AA, Stern C, Zazove P, et al. D/deaf Breast Cancer Survivors: Their Experiences and Knowledge. Journal of Health Care for the Poor and Underserved. 2018 Aug; 28(3): 1165-1190. doi: 10.1353/hpu.2017.0104.
  4. McKee MM, Stransky ML, Reichard A. Hearing loss and associated medical conditions among individuals 65 years and older. Disability and Health Journal. Available online 1 June 2017 (in-press). DOI: 10.1016/j.dhjo.2017.05.007
  5. Wu JP, McKee MM, Mckee KS, Meade MA, Plegue M, Sen A. Female sterilization is more common among women with physical and/or sensory disabilities than women without disabilities in the United States. Disabil Health J. 2017 Jan 3. pii: S1936-6574(16)30195-9. doi: 10.1016/j.dhjo.2016.12.020
  6. Meeks, L.M., & Herzer, K.R. (2016). Prevalence of Self-Disclosed Disability Among Medical Students in U.S. Allopathic Medical Schools. JAMA. 2271-2272. doi: 10.1001/jama.2016.10544
  7. Zazove P, Case B, Moreland C, Plegue MA, Hoekstra A, Ouellette A, Sen AFetters MD. U.S. Medical Schools' Compliance With the Americans With Disabilities Act: Findings From a National Study. Acad Med. 2016 Jul;91(7):979-86. doi: 10.1097/ACM.0000000000001087.
  8. Sarmiento C, Miller SR, Chang E, Zazove P, Kumagai AK. From Impairment to Empowerment: A Longitudinal Medical School Curriculum on Disabilities. Acad Med. 2016 Jul;91(7):954-7. doi: 10.1097/ACM.0000000000000935.
  9. Mckee MM, Paasche-orlow MK, Winters PC, et al. Assessing Health Literacy in Deaf American Sign Language Users. J Health Commun. 2015;20 Suppl 2:92-100. DOI: 10.1080/10810730.2015.1066468
  10. McKee MM, Case B, Fausone M, Zazove P, Ouellette A, Fetters MD. Medical Schools' Willingness to Accommodate Medical Students with Sensory and Physical Disabilities: Ethical Foundations of a Functional Challenge to "Organic" Technical Standards. AMA Journal of Ethics. 2016; 18(10): 993-1002. DOI: 10.1001/journalofethics.2016.18.10.medu1-1610
  11. Meeks, L.M. & Jain, N. (Eds.). (2015). The Guide to Assisting Students with Disabilities: Equal Access in Health Science and Professional Education. New York, NY: Springer. ISBN: 9780826123749

 

Collaborative Partners and External Affiliates


Media and Infographics

Visible disabilities: sensory and physical disabilities vs invisible disabilities: Learning disabilities, adhd, chronic health conditions, psychological disabilities

Research Spotlight: Disability inclusion in medical education

"The University of Michigan Department of Family Medicine is leading efforts to ensure that qualified students with disabilities who want to become physicians do not experience barriers simply because they have a disability. From highlighting the need for thoughtful admissions policies and progressive technical standards to identifying the numbers of students with disabilities, to capturing their lived experiences researchers in the department of Family Medicine are working to ensure that medical educators understand-- and are prepared to address--the nuanced needs of these learners."

Read the American Association of Medical Colleges (AAMC) March 2018 report Accessibility, Inclusion, and Action in Medical Education: Lived Experiences of Learners and Physicians With Disabilities, by lead author Lisa Meeks, Ph.D., Clinical Lecturer, Department of Family Medicine.

Other key and recent publications on disability inclusion in medical education:

  • Meeks LM, Herzer K, Jain NR. Removing Barriers and Facilitating Access. Academic Medicine. 2018 April;93(4):540-543. doi:10.1097/acm.0000000000002112.
  • Meeks L, Richards A, Chang A, and van Schaik S. Working with students with disabilities: simulation-based faculty development. Medical Education. 2017 Nov;51(11): 1181–1182. doi: 10.1111/medu.13423
  • McKee MM, Case B, Fausone M, Zazove P, Ouellette A, Fetters MD. Medical Schools' Willingness to Accommodate Medical Students with Sensory and Physical Disabilities: Ethical Foundations of a Functional Challenge to "Organic" Technical Standards. AMA Journal of Ethics. 2016; 18(10): 993-1002. DOI: 10.1001/journalofethics.2016.18.10.medu1-1610
  • Zazove P, Case B, Moreland C, Plegue MA, Hoekstra A, Ouellette A, Sen A, Fetters MD. U.S. Medical Schools' Compliance With the Americans With Disabilities Act: Findings From a National Study. Acad Med. 2016 Jul;91(7):979-86. doi: 10.1097/ACM.0000000000001087.
  • Meeks, L.M., & Herzer, K.R. (2016). Prevalence of Self-Disclosed Disability Among Medical Students in U.S. Allopathic Medical Schools. JAMA. 2271-2272. doi: 10.1001/jama.2016.10544
  • Sarmiento C, Miller SR, Chang E, Zazove P, Kumagai AK. From Impairment to Empowerment: A Longitudinal Medical School Curriculum on Disabilities. Acad Med. 2016 Jul;91(7):954-7. doi: 10.1097/ACM.0000000000000935.
  • Churgay CA, Smith MA, Woodard L, Wallace LS. A Survey of Family Medicine Department Chairs About Faculty With Disabilities: A CERA Study. Family Medicine. 2015;47(10):776-781.
  • Meeks, L.M. & Jain, N. (Eds.). (2015). The Guide to Assisting Students with Disabilities: Equal Access in Health Science and Professional Education. New York, NY: Springer. ISBN: 9780826123749

 

 

Lisa Meeks, Ph.D., Clinical Lecturer

Lisa M. Meeks, Ph.D.

Clinical Lecturer
Institute for Health Policy and Innovation (IHPI) Clinician Scholar
Oluwaferanmi Okanlami, M.S., M.S. Headshot

Oluwaferanmi O. Okanlami, M.D., M.S.

Assistant Professor of Family Medicine and Physical Medicine & Rehabilitation
Director for Medical Student Success, Office for Health Equity and Inclusion