UMHS Eosinophilic Esophagitis (EoE) Patient Registry

As a focus of the University of Michigan Mary H. Weiser Food Allergy Center's research efforts, we maintain a large clinical database of thousands of patients with food allergy and gastrointestinal related disorders seen by the Division of Allergy and Clinical Immunology, Division of Pediatric Gastroenterology, Division of Gastroenterology (adults).  This Registry will help researchers to analyze trends and outcomes from therapeutic approaches or clinical trials in this population, and rapidly identify issues related to clinical care to assemble populations for research studies. All University of Michigan patients with one of these conditions is invited to become part of the Registry.  Participation by as many as possible is important to learn more about these conditions.

Information about the Food Allergy and Gastrointestinal Related Disorders Prospective Patient Registry (UM-FAGIRD Registry)

  • Our goal is to have as many patients as possible join the registry to help us learn more about these conditions
  • You are eligible to join if you or your child is followed in the pediatric or adult gastroenterology clinics, or the allergy clinic, and have one of the following:
    • Food allergy
    • Eosinophilic Esophagitis (EoE)
    • Food Protein Induced Enterocolitis Syndrome (FPIES)
    • Food protein intolerance
    • There are two parts to the Registry:
      • Survey questions will be filled out online by the patient/parent/guardian. 
        • The initial survey is longer and asks background information as well as current information. 
        • There will be follow up surveys which are shorter and ask only interval information. 
        • You will be invited to participate in these by email- at 6 months, 12 months and every twelve months after this
  • The Registry team will get more information from your medical chart and add that to the registry.  This may include (but is not limited to) results of testing and procedures, use of medical facilities (clinic, ER, hospital), and diagnoses of your conditions.
  • Researchers may access your information in the future for research projects.  There will be no identifying information used in any publications from the Registry.
  • While we hope you continue to answer surveys for many years, you may stop at any time.
  • If you have questions, you can contact the Registry team at
    • fagirdquestions@med.umich.edu .
    • If you are interested in joining the registry, click the button below. You will be directed to a few screening questions, then your invitation to participate will come to your email. NOTE: If you are a parent with multiple food allergic children, you will need a different email address for each child. 

Click HERE to join the registry.

 Thank you!