Nephrology Faculty Speak to Congress on State and National Legislation

NOVEMBER 2023

The Department of Internal Medicine Division of Nephrology, compromised of over 135 faculty, staff, and trainees, is committed to serving people with kidney disease, through its focus on providing sensitive, comprehensive care to patients, conducting cutting-edge research, and advancing education to prevent and treat kidney disease.

According to the American Kidney Fund, kidney disease is growing at an alarming rate and is currently estimated to affect 15% of American adults, making kidney disease advocacy another critical role in combatting this disease. Faculty, staff, and trainees in the Division of Nephrology are routinely at the forefront raising awareness and advocating on the many issues and challenges surrounding kidney disease and its treatment and prevention. Most recently, three faculty members were invited to speak on current and proposed legislation to members of Congress, on both the state and national levels.

Rare Kidneys on the Hill Day Congressional Hearing

On July 12, NephCure hosted its annual Rare Kidneys on the Hill Day to raise awareness and advocate for legislative change to improve the lives of rare kidney disease patients and their families. The event included meetings with members of Congress and legislative staff and an in-person congressional briefing on NephCure policy priorities and initiatives. A congressional briefing was also held on the New Era of Preventing End-Stage Kidney Disease Act, a bill which is expected to be reintroduced in Congress in the near future. Laura Mariani, MD, MS, Associate Professor of Internal Medicine, was one of five individuals who were asked to speak. Learn more and watch the briefing.

Senate Bill 384

Dr. Mona Doshi testifying in support of Senate bill 384

Senate bill 384 prohibits life insurance, long-term care, and disability insurance companies from denying, canceling, refusing, or raising premiums for policies on former living organ donors. Mona Doshi, MBBS, Professor of Internal Medicine and medical director of the U-M Living Kidney Program, testified in Lansing on September 28 in support of the bill and to protect the rights of living  donors. Dr. Doshi has been invited to return to Lansing on December 5 to witness the signing of the bill by the governor. Watch Dr. Doshi's testimony.

New Era for Preventing End-Stage Kidney Disease Act

Patients and health care professionals who are members of the American Kidney Fund's Unknown Causes of Kidney Disease (UCKD) Coalition met with lawmakers on Capitol Hill in Washington, DC on September 21 to support legislation that will improve the diagnosis of rare kidney diseases. Julie Wright Nunes, MD, MPH, Associate Professor of Internal Medicine and member of the UCKD Coalition, met with leaders in the House and Senate, urging them to support the New Era for Preventing End-Stage Kidney Disease Act, bipartisan legislation that aims to improve the understanding and diagnosis of rare kidney diseases by creating the National Institute of Diabetes and Digestive and Kidney Diseases Centers of Excellence on Rare Kidney Disease Research. Learn more.

AFK's Unknown Causes of Kidney Disease Coalition Meeting on Capitol Hill
(L to R): Britta Dornan (NephCure), Gus Bilirakis (Congress Member), Dr. Julie Wright Nunes (U-M), Carlos Christi (Patient Advocate)
AFK's Unknown Causes of Kidney Disease Coalition Meeting on Capitol Hill
(L to R): Carlos Christi, Britta Dornan, Deborah Darcy (AKF), Brett Guthrie (Congress Member), Dr. Julie Wright Nunes