Outcomes Development

  • Patient Reported Outcome measure for adults with FSGS
  • Patient Reported Outcome measure for adults and children with FSGS or Minimal Change Disease
  • Edema Clinician Reported Outcome measure 
  • Proteinuria as a surrogate for long-term renoprotection in primary FSGS
  • Nephrotic Syndrome Patient Reported Outcomes Consortium is a collaboration between academia, patient foundation partners, and industry to develop measures that collect information directly from patients about how they feel and function. These measures can be used in clinical and research settings. Learn more at www.kidneyresearchnetwork.org/patient-reported-outcomes