SCI Access Newsletter
The current issue of SCI Access Winter/Spring 2019 is now available. Read for updates on exciting new studies and how you can participate. We will now have a larger presence on our website where we will revisit some of the prior SCI Access highlights and give you updates on what's happening now, plus sneak peaks into new and interesting things happening around the world.
Exercise and Fitness After Spinal Cord Injury
This 19-minute video features individuals with SCI who share their fitness routines and explain how exercise has improved their quality of life. The video also includes expert input from health care professionals at the University of Pittsburgh Model Center on Spinal Cord Injury, who provide clinical insights on the importance of fitness and physical health after SCI.
An Audio Described version of this video is available here.
Happy Holidays, A letter from Dr. Tate
And suddenly, it’s December again. A festive month in which many of us have more time for ourselves, family and friends. It’s as if the last days of the year make us more aware of the value of time, freedom and togetherness.
2018 was a productive year with so many active research projects bringing new information to benefit spinal cord injury (SCI) care. You will read about some of these project updates in an upcoming issue of our newsletter. Watch for it in February. As we move forward, we are also streamlining what we do to keep you informed about the latest developments and information related to SCI research. Starting in 2019 we plan to have most of our newsletters uploaded to this MSCIS website (https://medicine.umich.edu/dept/pmr/research/research-areas/spinal-cord-injury-research) so that you can access them from where you are and whenever you wish. We hope this will encourage you to tap into the useful information they continue to provide. We also hope to inspire more communication with you about what you can contribute to future short SCI online reports. Just recently, I had a chance to review some of our older newsletters and they contain some excellent articles with our SCI peers. We plan to follow up on some of these and provide you with an update of what our authors have done since we last published their stories. In 2019, we additionally plan to create and mail an end of the year printed version of our new SCI Access Magazine, which will highlight many of the personal interest stories and research updates for the year. If you would like to be added to the mailing list, please contact our office. This holiday season is certainly the perfect time to say thank you to our donors and those who have continued to support our research efforts throughout the years. We are especially thankful for the Fraternal Order of the Eagles for their continued support of our research activities, our University Medical School and the Department of Physical Medicine and Rehabilitation. We are also thankful for the support and collaboration of many of our colleagues including Mary Free Bed Rehabilitation Hospital in Grand Rapids, Craig Hospital in Colorado, the Craig Neilsen Foundation in California, the National Institute of Disability Independent Living and Rehabilitation Research and the US Department of Defense for their continued support of our work. For those of you who continue to participate in our research a big thanks for all your efforts too. We could not have done it without you. Wherever you are, we wish you all a very Happy Holiday Season!
Front row/left to right: Diane Nicholls, Denise Tate, Marty Forchheimer. Back row/left to right: Haley Scott, Suzanne Walsh, Chris Graves, Ed Rohn, Connie Pines, Deb Demski
Connecting With Our SCI Participants
September was an exciting month at the Michigan Spinal Cord Injury System (MSCIS)! The month marked another milestone for the follow-up interview project, of which many participants generously took time to participate in. With their help, we met our goal of completing 130 interviews in the last year! The main purpose of these interviews is to understand how our participants are doing after discharge from the hospital. The project helps us learn how effective current rehabilitation treatments are and how people adjust to life after SCI. Your continued participation is invaluable! Thank you to all those who have dedicated time to this project in the past, and continue to do so every year. We look forward to speaking with you for the next follow-up interview, let's keep in touch!
Presenting Our Research Findings at ISCoS
Decision Making After Loss of Bladder and Bowel Function
Spiritual Well-Being After SCI
Presentations at PVA, August 2018
Two of our team members, Edward Rohn, PhD (pictured here) and Marty Forchheimer presented at this year’s Paralyzed Veterans of America (PVA) conference held in Dallas, TX in late August. Mr. Forchheimer presented on "Relationships of Spiritual Well-Being to Depression and Quality of Life in People with SCI" and "Quality of Caregiving Among People with SCI and it's Impact." Dr. Rohn's talk was entitled "Giving Voice to Rehabilitation Patients Through Qualitative Research: Lessons to Inform Clinical Practice."
Craig H. Neilsen Foundation Annual Meeting
Researchpalooza: Engaging Researchers at U of M on SCI Research
Check out the current issue of SCI ACCESS from the Michigan Spinal Cord Injury System!
Meet Lucy Robinson. Lucy is a woman who lives a life filled with vitality and adventure. She currently resides in a fully renovated English cottage built in the late 1800s in Oxford, England. Lucy is a self-described advocate and educator for people with spinal cord injury (SCI), not only in the United Kingdom, but in remote places far beyond England’s borders. Recently, Lucy told me her story...
To read more about Lucy, all of our current SCI research studies, and much more, click on this link: SCI Access v24.pdf
Look for the next printed version coming in late fall.