The Prechter Bipolar Research Program is dedicated to sharing its rich data sets with fellow researchers. In addition to the rich, deep clinical phenotyping and mood assessments, it holds DNA sequencing data from people who have been diagnosed with bipolar disorder and undiagnosed control individuals. There is a repository of electronically captured health and ecological momentary assessment data, including anonymous speech data. We are also able to distribute biospecimens from our cohort matched with these data, including whole blood, plasma, saliva, hair samples and purified DNA.
Data can be shared in an itemized, flat file format or through a collaborative research agreement according to the scope and nature of the project.
Our Cohort
- Over 1,500 research participants, with 1000 active, with bipolar spectrum disorders and controls
- Ongoing accural over 18 years with 9-years average duration in study per participant
- Overall retention rate of 67%
- Average age 39 years old with 63% female
- Over 42,000 ASRM and PHQ-9 assessments
- Annual medical psychiatric and treatment updates
Clinical assessment data are organized into 7 ontological domains:
- Disease States
- Neurocognitive Functioning
- Personality
- Motivated Behaviors
- Sleep and Circadian Patterns
- Life Story and Experiences
- Treatment and Outcomes Patterns
Data Dictionary
The Prechter Program has built a searchable data dictionary that is available on an EC2 instance of AWS through a Django web based framework. Prechter Program data has been shared over 200 times since 2021, and the Program has participated in five international meta analysis collaborations.
Click here to visit our data dictionary.
Contact Us
Interested in our Prechter Program data? Contact our data team at [email protected].
Data Use Agreement required.
For specific inquiries and further information, contact Prechter Program Director Melvin McInnis, M.D., at [email protected].