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This interactive panel discussion will present key issues and current research on the ethical, legal and social issues raised:
1. for patients and clinicians in gathering their health information and biospecimens for a LHS,
2. in converting patient information and donations into usable data and specimens for quality improvement and secondary research to operate a LHS, and
3. in the legal and property interests in transitioning such data to knowledge in a LHS.
1. Andrew Shuman, MD
Assistant Professor in the Department of Otolaryngology – Head and Neck Surgery, University of Michigan Medical School
Chief, ENT Section of the Surgery Service, VA Ann Arbor Health System
Co-Director of the Program in Clinical Ethics, Center for Bioethics and Social Sciences in Medicine (CBSSM)
2. Kayte Spector-Bagdady, JD, MBioethics
Research Investigator in the Department of Obstetrics and Gynecology, University of Michigan Medical School
Director, Program in Research Ethics, Center for Bioethics and Social Sciences in Medicine (CBSSM)
3. Nicholson Price, JD, PhD
Assistant Professor of Law, University of Michigan Law School