Dates
Tuesday, June 26 - Wednesday, June 27, 2018
Location
Rosen Centre Hotel
9840 International Dr.
Orlando, Florida, 32819
Phone: (407) 996-9840
Fax: (407) 996-2659
Objectives
The objectives of the Lipodystrophy 2018: A Call for Global Action symposium are to:
- Get a better perspective of the current state of care delivery for lipodystrophy and to understand the burden of disease from the patient perspective
- Align the community of lipodystrophy researchers for synergy and collaboration with goals of harmonization of patient registry data elements and forming a clinical research network
- Provide an update on recent exciting findings in the lipodystrophy field
- Review and revise disease definition and to develop and publish objective disease criteria
- Identify gaps in knowledge in lipodystrophy and develop a patient-centric research agenda together with affected patient community
Schedule
Schedule is tentative and subject to change. Please click here for the 2018 Lipodystrophy Symposium program information, complete agenda, and abstracts.
Tuesday, June 26, 2018
For Patients Only: Morning Session and Lunch will be at the Clarion Hotel.
8:00 am Breakfast
9:00 How to Tell Your Story
Connie Newlon
11:05 Who is Lipodystrophy United (LU)
Andra Stratton, MA
12:00 pm Lunch
1:00 Break and Rest
2:20 Meet in Lobby to Shuttle to the Rosen Centre Hotel
Scientific Meeting starts post ADA.
1:00 pm Welcome
Elif Oral, MD, MS; Louis Phillipson, MD, PhD; Andra Stratton, MA
1:15 Keynote Address I – Chair, Louis Phillipson, MD, PhD
Mechanisms of Insulin Resistance in Lipodystrophy and a Potential New
Therapeutic Approach – Gerald Shulman, MD, PhD, Recipient of the Banting
Medal 2018
2:00 Care Models for Lipodystrophy: A Look Around the Globe – Chair, Vinaya
Simha, MD, MBBS and Selcuk Dagdelen, MD
– Japan – Ken Ebihara, MD
– France – Corinne Vigouroux, MD
– Learning from NHS – Claire Adams, RN
– Spain – David Araujo, MD
– Turkey – Baris Akinci, MD
– Latin America – Carla Musso, MD
– Russia – Ekaterina Sorkina, MD
Role for Next Gen Sequencing in Clinical Medicine
Toni Pollin, PhD
3:30 The Burden of Lipodystrophy – Chair, Andra Stratton, MA
– The Impact of Metabolic Abnormalities (short overview)
Carla Musso, MD
– The Impact of Nonmetabolic Multi-system Manifestations
Claire Adams, RN
– Mortality in Lipodystrophy
Josivan Lima, MD, PhD
– Living with Lipodystrophy
Patient Representatives
5:45 - 6:45 Poster Session, Patient Meet and Greet, and Youth Meeting (ages 11-21)
7:30 - 10:00 Dinner Meeting for All Attendees
– Tribute to Fallen Heroes – Presented by Andra Stratton, MA and LU
– Thinking About Our Legacy – Presented by Elif Oral, MD, MS
Wednesday, June 27, 2018
There will be a parallel Patient Symposium from 10:45 to 12:15.
7:00 – 7:30 am Scientific Session – Breakfast – Rosen Centre Hotel
7:00 – 7:30 am Patient Session – Breakfast – Clarion Hotel
7:30 Novel Findings in Lipodystrophy That May Change Paradigms –
Chair, Justin Rochford, PhD
Anil Agarwal, PhD; David Araujo, MD, PhD; Abhimanyu Garg, MD;
Sonia Rehal, PhD; Justin Rochford, PhD; Marie-Christine Vantyghem, MD, PhD;
Corinne Vigouroux, MD
10:30 Break
JOINT SCIENTIFIC & PATIENT SESSIONS
10:45 Scientific Session – Road Map to Novel Therapies I –
Chair, Simeon Taylor, MD, PhD
Rebecca Brown, MD, MHSc; Elif Oral, MD, MS; Simeon Taylor, MD, PhD
10:45 Patient Session – Be Your Best Advocate
Lipodystrophy United Board Member
12:15 pm Break
12:30 Lunch Meeting – Chair, Elif A. Oral, MD, MS
Objective Disease Criteria: Is This an Attainable Goal and What Do We
Have to Do?
Rasimcan Meral, MD
The Need for Change in Disease Classifications
- Case Presentations That Challenge Current Paradigm – Cases from across the
globe
2:00 All About Disease Registries – Chair, David Araujo, MD, PhD
Baris Akinci, MD; David Araujo, MD, PhD; Renan Montenegro, Jr., MD;
Maria E. Andres, MD; Virginia Fernandes, MD; Nelson Purizaca, MD
3:30 Road Map to Novel Therapies II – Chair, Rebecca Brown, MD
Audrey Melvin, MB, BCh; Alan Shuldiner, MD
4:15 Keynote Address II – Chair, Abhimanyu Garg, MD
Leptin, Lipodystrophy, and Neural Regulation of Glucose Metabolism –
Jeffrey Friedman, MD, PhD
5:30 Symposium Adjourns
Program Booklet and Abstracts
Please click here for the 2018 Lipodystrophy Symposium program information, complete agenda, and abstracts.
Registration Information
Please see below for registration rates:
- Academic Participants: $100
- Academic Trainees: $10
- Industry Sponsors: $500
- Patients: Registration fee is waived. All patients must still register.
Register Here
Patients Only: To apply for financial assistance for travel expenses, please complete the Patient Stipend Application.
Scientific Organization Committee
- Phillip Gorden, MD (Co-Chair)
- Abhimanyu Garg, MD (Co-Chair)
- Baris Akinci, MD
- David Araujo, MD, PhD (Universidad de Santiago)
- Rebecca Brown, MD (NIDDK)
- Charles Burant, MD, PhD (Michigan)
- Ormond MacDougald, PhD (Michigan)
- Carla Musso, MD
- Martin Myers, MD, PhD (Michigan)
- Elif Oral, MD (Michigan)
- David Savage, MD (Cambridge)
- Andra Stratton, MA (President of Lipodystrophy United)
- Simeon Taylor, MD, PhD (Maryland)
Collaborator
Sponsors
Contact Information
Please contact Diana Rus at [email protected] with any questions.
This event is co-organized by the University of Michigan’s Fast Forward Medical Innovation program, which offers biomedical researchers at the University of Michigan and across the state the resources and support to navigate the road to successful commercialization and entrepreneurship.
