Rare Disease Day Course Materials

Please click the link to view the agenda and brochure.

• Insights from the Undiagnosed Diseases Network
  William Gahl, MD, PhD
• FDA’s Orphan Drug Designation Program
  Lewis Fermaglich, MD, MHA
• Rare Advocacy Council At The State Level: Lessons From Michigan For National Stage
  Laura Teicher Bonnell
• Full Spectrum Translation in Rare Disease Research
  Hans Bjornsson, MD, PhD
• Family Dynamics and Difficult Moments: A Different Facet of Rare Diseases
  Eric Scott, PhD
• Holistic Care Design for Chronic Intellectual Disabilities
  Sharon Lewis
• Power Presentations from Labs and Research Groups
• Basic Research: The Power of Animal Models and their Promise in Rare Disease
  Shigeki Iwase, PhD and Julie Secombe, PhD
• KDM5C Intellectual Disability Family Panel
  Christina Vallianatos, PhD
• Community Leaders and Patient Champions: Navigating Resources for Rare

• Friday CME Session
• Friday Bonus Session
• Saturday CME Session
• Saturday Bonus Session

All CME certificates have to be obtained through the MiCME website here. Attendance must be registered within 6 months to be awarded credit. Please follow the steps below.

• Login to your account at MiCME at http://micme.medicine.umich.edu/
• Don't have an account? Click on the "Login or Create a MiCME Account" link at the top of the page and follow the instructions.
• Note: You must have a MiCME account to claim credit for any University of Michigan Medical School (UMMS) CME activity.
• On the Credit Center card on your Dashboard, click on Claim Credits and View Certificates.
• Locate the activity in the Activities Available for Credit Claiming section.
• Under Action, click on Claim.
• Under Action, click on Add Credit.
• Enter the number of credits you're claiming and the the "I Attest" button. (Note: This number should reflect credits claimed for the entire course, not just a single day.)
• Complete the evaluation form to provide feedback on the activity.
• Click the Submit button.
• Scroll down to the Awarded Credits section to view or print your certificate and/or comprehensive University of Michigan CME transcript.

You are able to print your receipt conveniently from your MiCME account. To do so, please follow these steps to print it:

1. Log into their MiCME Account here
2. Click Dashboard
3. In the User Center, click “Registration Receipts”
4. Print Statement

• EUSA Pharma
• Sobi (Rare Strength)
• Janssen Pharmaceuticals - Pulmonary Hypertension
• Genentech
• Amryt Pharma
• Alexion- Astra Zeneca Rare Disease Company
• Sanofi